advocacy ethics

Don’t Kick Yourself Later! The Top 10 Reasons You Need to Attend the APHA Workshops

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With only two weeks to go before our Alliance of Professional Health Advocates Business & Marketing workshops, we still have a few seats left! I know that in the past when I’ve been on the fence about whether to take a course or attend a seminar, I have too easily let them go by without taking action – missing out entirely – and then – ARGHGH! – I kick myself afterward. I do not want you to kick yourself afterward if you miss them! So here are your top 10 reasons to attend these workshops: 10. Because, no matter what …

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Stealing Not Allowed

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Suppose you wake up one morning, and realize as you make your way to the kitchen that someone has broken in overnight and stolen your belongings! You never heard anything – you slept right through it. And yet, they’ve taken some of your most valued possessions. You feel violated. You’ve lost your sense of security. It’s a disruption, it’s disturbing, it makes you feel sick…. You try to figure out exactly what is missing, what exactly they have taken, and you wonder whether you’ll ever get any of it back or even more importantly, whether you can ever feel safe …

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What Private Patient Advocates Can Learn from Paula Deen*

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Hey y’all! If someone had asked you on the June 20, 2013 to describe Paula Deen, you might have described her as a bubbly, vivacious, popular Food Network star, author, well-merchandised cook or chef. Whether or not you liked her, and no matter what you thought of her approach to food, you at least had to admire her empire and popularity. Over the next week, her empire collapsed, seemingly because she fessed up to using the N-word during a lawsuit deposition.* The bigger they are, the harder they fall. It makes no difference whether or not Deen’s fall was fair …

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Sharing Healthcare’s Dirty Little Secrets

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I’ve just written a post at About.com about my recent mammogram experience where the breast center I’ve gone to for more than a decade managed to dissolve my trust of their service in the span of one phone call. Is it possible that they were being honest and I have no reason to lose my trust in them? Yes, of course. Maybe I’ve jumped the gun – or maybe not. But it doesn’t really matter. Because whether they deserve my distrust or not, I will never trust them again. No, not a chance. (Just because I’m paranoid doesn’t mean they …

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The VITAL Piece of Information the Press – and Many Patients AND Advocates – Are Missing

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It happened one more time this week, frustrating me one more time this week, making me feel like a broken record again this week and then realizing…. hey! Why not make this point louder and clearer enough so that YOU can all be a part of my “point well spoken” army! What am I talking about? The press – which has produced one more article this week about this “new career” of patient advocacy or navigation, making it sound like a grand dream come true for anyone who cares about helping patients. None of these articles have been realistic about …

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Bring It On! Forum Fireworks Erupt Again

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One of the most valuable resources any profession has is access to other people who are also invested in the interests of that profession. The internet and social media, of course, provide an opportunity to access this valuable resource on a global scale. … Which means that participants, including professionals and the people who are striving to join their professional ranks, come from a variety of backgrounds and attitudes, environments, personalities and life views. Now, mix that together with a specific profession – patient advocacy – where its proponents are highly passionate about their work. Add a dash of mixed …

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An Advocate’s Allegiance Makes All the Difference

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Just in the past week alone, I’ve been asked three times why someone would hire a private patient advocate when there are so many other forms of help available. What other forms would those be? A variety: hospital patients can call on the hospital’s patient advocate for help cancer patients find navigators to help them through treatment insurance customers can call their customer service rep, or even an insurance company patient advocate a newly diagnosed patient can often find that large disease advocacy organizations, like the Leukemia and Lymphoma Society or the American Diabetes Association, will provide an advocate to …

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