advocacy ethics

Let’s Talk About Excellence in Patient and Health Advocacy

In less than one week, we will be announcing the winner of this year’s Schueler Patient Advocacy Compass Award. This is a big deal – and not just for the winner, who will find some perks that go along with the award. It’s a big deal to you, too, because in many ways, the stories our applicants told, and the questions they were asked to address, are what defines excellence in patient and health advocacy. In other words – these attributes, based on Ken Schueler’s work, goals and ideals define what we consider to be a top-notch, client-life-enhancing advocate. The …

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10 Lessons Patient Advocates and Navigators Can Learn from the Superbowl

Superbowl image

I’ll confess that I’m not a big football fan. And I’m certainly not a big fan of sports metaphors (which actually drive me crazy in business because I think they are exclusionary – not everyone understands them.). But I am a fan of learning good business lessons from the experiences we have and the activities that are going on around us. And the lessons we can pull from the Superbowl are, well… super. So please forgive the sports metaphors for the moment, and see what you can learn: 1. The Superbowl is about excellence. Only the top two teams in …

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Coopetition – But Don’t Give Away the Farm

farm - barn

Many readers of this blog know that prior to devoting my career to patient empowerment and patient advocacy, I owned a small marketing company that worked specifically with service professionals and small businesses. I had clients of every flavor, from manufacturing companies to hair salons, from lawyers to book authors, to cookie-bakers and small distribution companies – a gamut. An important part of my work was mentoring – helping others who wanted to be in business grasp the basic concepts that were necessary, helping them apply those concepts to their own fields, then jump in with both feet. I truly …

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Why We Should Avoid Using the Title “Certified Patient Advocate”

It’s a big question among patient and health advocates – whether or not someone is considered “certified” as a patient advocate. Last week I answered a question that came from an advocate about why someone would bother taking a course or finishing a program if they wouldn’t be considered “certified” at the end…. But there are even bigger considerations – some food for thought for those who disagree with my stand about claiming certification. I believe the use of “Certified Patient Advocate,” in these early stages of the profession’s development has the potential of hurting both you, as an individual …

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Clarifications and an Update on the Schueler Compass Award

Just so you know we pay attention, three important concerns have popped up about the Schueler Compass Award, the award recently announced at the AdvoConnection conference. These concerns came in the form of replies to the survey we took after the conference was over. Since the surveys were completed anonymously, and since comments expressed by one person may represent the thoughts of many, we’ll address them here, publicly, on the blog. Concern 1: Posted among the survey results about the conference in general was the following: There was alot of conversation about the KS awards going to 2 members who will …

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The Option of Saying “NO”

Several months ago I wrote about the tendency of big-hearted advocates to over-extend themselves with volunteer work; that when someone needs their help, but doesn’t have the means to pay them, they don’t know how to say “no.” We looked at some of the ways to get past that inability in order to keep our businesses moving forward. Truth is, that is only one of the circumstances where “no” is the right answer. That’s true whether it is us, as professional advocacy business owners who must choose to say no, or whether we must help our clients choose “no” if …

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The Great Divide: The Haves and Have Nots

(Originally posted June 2011. Updated June 2019) The health and patient advocates who are listed at AdvoConnection are all private practice advocates; that is, they work directly for patients and the patients pay them. Their services are not covered by insurance, their services aren’t donated or free. This is how these advocates make a living – they are paid by patients or caregivers. That seems to upset some people, and lately, it seems like a number of people have taken some sort of offense at that idea – as if patients or caregivers should not have the right to seek …

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APHA Blog : The Alliance of Professional Health Advocates
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