When Is an Advocate Not an Advocate?

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Twice in the past week, I heard from people whose APHA memberships expired, explaining why they didn’t renew. In both cases excuses in the form of complaints about their memberships were made. A little bit of research turned up the facts that those complaints were at least misguided. I responded to each of them about their frustrations. In both cases, they felt insulted.

Now, don’t get me wrong. I receive criticism and suggestions on a regular basis, sometimes including good, usable, feedback. I’m always appreciative of constructive feedback and ideas even if it’s in the form of criticism. That’s how we improve the benefits APHA offers.

Further, I recognize there are many reasons someone might not want to renew a membership. Sometimes health challenges have gotten in the way. Sometimes someone just decides independent advocacy wasn’t a good fit for them. Most of the time I hear nothing at all.

But that’s not what these exchanges were. In both cases they were making excuses by using APHA membership as the whipping post. Not kosher.

Where have they been for the past year?  Why did they wait until their memberships expired to complain? I wonder how they think they can be good advocates for other people if they don’t even advocate for themselves?

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To Gain a New Client, You’ll Have to Break 2 Bad Habits

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The phone rings. It’s a new, potential client calling. You answer, “This is Joan Advocate. May I help you?”

The client, Juanita, is relieved to hear your friendly voice. She launches into her story about the doctor not listening to her, and that she can’t fill her prescription because it’s too expensive. Then she asks if you can help her.

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The Sinkhole

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Regular readers of this blog know a couple of things about me.

For one thing, they know I live in Florida, having moved here from Upstate NY two years ago, no longer willing to freeze my cabungus off during the winter. (Or, as my husband phrases it, “you don’t have to shovel 90 degrees!”)

They also know many of my blog posts are metaphorical, based on inspiration I get from my daily life which at times is well, yes, pretty darn metaphorical!

And thus we set the stage for today’s post – The Sinkhole. Pure Florida. Pure Metaphor. See what you think.

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When Life Defies Logic

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…then it’s time to get logical. And logic will triumph!

As many readers know, I’m in the process of coordinating our APHA Summits. We had our first Summit adventure in San Diego a few weeks ago. What a delight! We all learned so much from each other!  Next up… Newark / NYC, then on to Chicago, and two new groups of passionate advocates. (I can’t wait!)

What few people understand is the amount of preparation required to make these Summits happen. It’s not so simple as everyone showing up in the same place at the same time to connect with each other. Planning actually begins many months in advance when cities and venues are chosen, initial contacts are signed, the website and registration are set up… much to prepare.

Then in the last few weeks prior to each event, the actual choices are made for room set-ups (round tables? classroom style?), food choices (vegetarian? gluten-free? nut allergies?), and AV needs (are we doing powerpoint?  do we need a projector, screen, or wifi?)

Of course, each choice comes with a price tag. Hotel price tags vary. And sometimes, those price tags defy logic. And I mean DEFY LOGIC!

Which is one reason I say – when life defies logic, it’s time to get logical. As follows:

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Should Insurance Provide Reimbursement to Independent Advocates?

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I had interesting conversations with someday-advocates last week. I love those conversations; I always learn something from them which I can then bring back to the Alliance and the information we share with members.

And then again, sometimes the questions I hear are the same ones that have cropped up over and over again, including today’s question:  Is there insurance reimbursement for the work of an independent advocate?

This time, I’m going to answer that question with a few questions of my own.

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