Powerful, Useful, and Beneficial — From HBO’s Vice Media: Patient Advocates Can Save Your Money and Your Life

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In April of this year, patient advocates convened in San Diego for the APHA Summits to mix and mingle, learn, and talk shop…

Joining us was the video crew from HBO’s Vice News, led by producer Amanda Pisetzner – a delightful group of young people, with so much talent and enthusiasm, asking great questions…

They worked in the background during our networking event, and separately they met with two of our advocates, AnnMarie McIlwain, and Karen Vogel, as they conducted their important work. The crew even met with client-patients who AnnMarie and Karen found were willing to discuss their own situations and results…

Bottom line – the most powerful public video we’ve seen, creating a very clear picture of the benefits of independent advocacy and why everyone needs an advocate.

We have arrived! (Note: if you attended the San Diego Summits – you might be in the video!)

I invite you to watch it – and then I’ll share a few steps you can take, too, not just to help boost your own practice, but perhaps to find yourself the featured advocate in a future media activity.

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The Rest of the Story X 4

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Channeling Paul Harvey today….

(Don’t know who Paul Harvey is?  Maybe you’re too young, or you never spent much time listening to Talk Radio… Paul Harvey was famous for his radio broadcasts called “The Rest of the Story.” His stories always featured a twist or turn, or something unexpected.)

Over the past few months, I’ve blogged about points, lessons, or stories, some of which have interesting follow-up or twists to them. So I’ve put them into one post for you – and thus we’re channeling Paul Harvey.

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When Life Defies Logic

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…then it’s time to get logical. And logic will triumph!

As many readers know, I’m in the process of coordinating our APHA Summits. We had our first Summit adventure in San Diego a few weeks ago. What a delight! We all learned so much from each other!  Next up… Newark / NYC, then on to Chicago, and two new groups of passionate advocates. (I can’t wait!)

What few people understand is the amount of preparation required to make these Summits happen. It’s not so simple as everyone showing up in the same place at the same time to connect with each other. Planning actually begins many months in advance when cities and venues are chosen, initial contacts are signed, the website and registration are set up… much to prepare.

Then in the last few weeks prior to each event, the actual choices are made for room set-ups (round tables? classroom style?), food choices (vegetarian? gluten-free? nut allergies?), and AV needs (are we doing powerpoint?  do we need a projector, screen, or wifi?)

Of course, each choice comes with a price tag. Hotel price tags vary. And sometimes, those price tags defy logic. And I mean DEFY LOGIC!

Which is one reason I say – when life defies logic, it’s time to get logical. As follows:

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Revisiting the Mean Girls in Our New Advocacy Environment

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The “mean girls” are at it again… or so I’ve been warned by a handful of APHA members.

I’m not sure I agree. But I know one thing for sure: the world of the mean girls has shifted.

Who are the “mean girls?”  I first applied the moniker about three years ago to refer to nurses who believed that no one should be a patient advocate unless he or she is a nurse. I cited instances when a small handful of nurses had bullied other non-nurse advocates both at conferences, and through emails – yes, actively bullied. I outlined once and for all, and very specifically, all the reasons one does not need to be a nurse to be an effective patient advocate. None of that has changed.

Now – because in the past I have been accused of stepping on nurses’ toes when I bring this up (which is never my intention) – let me be perfectly clear. I LOVE nurses! I LOVE their passion and commitment to improving the lives and quality of lives of their patients! I respect nurses for their knowledge, experience, and abilities! And I wholeheartedly support their segue into the world of independent advocacy, with gratitude that they are willing to move to the bright side.

I am also very sure that the “mean girl” concept applies only to a VERY small handful; and certainly not to all nurse-patient-advocates.

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That Very Very Thin Line – Do NOT Be Tom!

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My husband and I moved two years ago to Florida where we now live in an “active adult” community*. We love it! We’re very happy here. We’ve met and made many new friends – people we have truly come to care about.

I’m following in family footsteps.  My parents did the same thing decades ago. They lived in a different city, but they, too, lived in an active adult community for 20+ years.

My father, in a somewhat macabre voice, always called it “God’s Waiting Room.”

And, as I learned again this past week, it turns out that we now live in God’s Waiting Room, too.

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