caregivers

Revisiting the Question: Advocate and Proxy, Too? Making Decisions for Clients

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Two years ago we asked whether a health/patient advocate can also be a decision-maker for her client in the form of being a healthcare proxy or guardian (the patient-designated person who makes end-of-life decisions for the patient, based on wishes the patient has legally documented). Since the ethics and standards of the original advocate role very specifically state that an advocate WILL NOT and CAN NOT make decisions for a client, would the new role of proxy or guardian create a conflict-of-interest? The scenario shared was that “Gwen” had been Mrs. Smith’s advocate for a long period of time and …

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Our Clients Need This ONE Skill the Most

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Twenty years ago, prior to self-employment and work in patient empowerment and advocacy, I was the marketing director for my local community college. In so many ways I loved that job. It was different every day and allowed me to meet and get to know people I never would have known in any other way. It required me to get out into the college community to meet faculty, other administrative departments, and students. It required me to have good relations with the press, and because it was during a recession, it required me to be creative and clever to bring …

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Survey Says! The Results Are In

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We privately paid, independent, professional patient advocates “tend to be older, white, female, more highly educated, and have other medical training or past careers in related professions.” …. or at least that is one conclusion drawn by the surveyors — those who built, issued and analyzed the first National Health and Patient Advocate Survey.* Both private, self-employed advocates, and employed advocates (hospitals, insurers, employers), were surveyed. Whether or not you were one of the folks who took the survey, if you have any interest in patient or health advocacy as a profession, you’ll be interested in the results. They were …

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Would You Draw a Line?

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from Wikipedia

Early in my patient empowerment work, I was invited to write a column for my local daily newspaper. Over the next six years, I wrote hundreds of columns on every empowerment topic imaginable from how to get copies of your own medical records, to how to research a drug your doctor prescribed for you, to the (what we called at the time) “healthcare reform”. My column ended in 2011, but much of that work still stands today, some as useful today as it was then.* As a result of those columns, I became a resource person for many locals who …

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Tough Questions, Informative Discussions, and Opportunities to Count Our Blessings

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From 2006 to 2010, I hosted a weekly radio show, sponsored by Upstate Medical University (Syracuse, NY). It gave me the opportunity to interview truly knowledgeable experts in every aspect of medicine and healthcare you can imagine. It was an incredible learning experience. I would walk away from our recordings each week realizing that for every iota of information I knew or had just learned, there were millions of iotas I didn’t know, would never know, and might never even know to ask about. Gratifying, brain-stimulating, and sometimes overwhelming. Included in the conversations was a monthly feature that focused on …

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These 8 Yard Sale Lessons May Improve Your Advocacy Practice

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We’ve made the decision. We’re leaving the cold Northeastern winters behind, and in just a few weeks my husband and I will be moving south. We’ve sold our home in Upstate NY. We’ve purchased a home in Florida. We’ve planned the details for the actual move itself… The continuing challenge is one that will sound familiar to many of you. We have way too much stuff! We were newlyweds when we moved into our current home in 2007. We jammed two entire households worth of stuff into this home – most of it was simply moved to the basement. Then …

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Let’s Play Jeopardy!

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Channeling Alex Trebec here? a few answers for you, with questions that may sound familiar? Most stem from real patients and caregivers who seek help getting what they need from the healthcare system. Your job is to figure out what the question is, then, hopefully, to act accordingly.

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