caregivers

Advocating – It’s Like Nailing Jello to a Tree

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(No – that’s not Dad in the photo – but this gentleman is quite representative!) Last week I shared notes from my father’s hospital bedside as he began his recovery from back surgery. The majority of his hospital stay was safe and successful, although we continued to have big problems managing his pain throughout. Dad was discharged to a skilled nursing center to convalesce and begin rehab. He’s well on the road to recovery. We have much to be thankful for. As mentioned previously, my work does not typically include helping individual patients with their healthcare challenges. I write and …

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And Now a Word for Patients….

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Last week we recognized Private Professional Patient Advocates Week, and across the country, some great stories showed up in newspapers, on TV, online and in radio broadcasts sharing stories of patients and caregivers who have been helped and the advocates who have helped them. Some of the stories, both reviewed last week and over the past few years, are amazing – high end cancer protocols that were never mentioned by physicians, but were brought to patients by their advocates. Complementary therapies, and wellness strategies that patients feel have been useful to them. Thousands of dollars …

Who Deserves a Patient Advocate’s Help?

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I’ve wrestled with this question more than once. It’s the question raised on occasion by those who talk about universal healthcare, and a for-profit healthcare system. It’s a question asked by those who are concerned that not everyone in the United States has access to healthcare. It’s asked by almost anyone who asks me what I do for a living. The question is, “Doesn’t providing private patient advocacy services only to those who can afford them, just create one more division between the “haves” and the “have nots?” Lots of soul searching, and more than a few conversations have produced …

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Lessons from The Loss of a Patient

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Sooner or later, it happens to every patient advocate or navigator who works with patients on the medical aspects of their care (as opposed to other forms of advocacy, like billing or legal advocates). One of “our” patients – someone whose hand we have held, who we have protected from problems in the hospital, who depended on our advocacy expertise as a way to make the rough road through disease and debilitation smoother… A patient we had built a comfortable and friendly relationship with, a patient we invested ourselves and our work in… That patient dies. And we feel like …

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Doctor Recommendations – Do You? Should You?

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drunk doctor

I was quite surprised in a conversation recently with an advocate who is not (yet) a member of AdvoConnection. OK. That’s putting it mildly. I was actually stunned. “Why do people feel well served by you?” I asked him. “Because I have a beeline into all the good doctors,” he replied. When I asked him to explain further, he said it was because he knew the best doctors to recommend and which ones to tell patients to avoid. [Pause. Letting that sink in…] In conversations with both long-time advocates, and lawyers, too… and honestly – what makes common sense – …

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Patients’ Advocates in Hospitals – Going to the Line

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Updated March 2017 From time to time I hear from a patient who complains about a situation that occurred during a hospital stay – usually the spouse or child of a hospital patient. The great majority of those notes say, “I spoke to the patient advocate in the hospital but they couldn’t do anything for me!” When I reply, I explain that the hospital patient advocate works for the hospital – not for the patient. Hospital patient advocates usually report to the legal/risk management department in the hospital and get their paychecks from the hospital. They help when they can, …

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What’s the Difference Between a Patient Advocate and a Geriatric Care or Case Manager?

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One of our APHA members asked me about these differences a day or two ago… So I thought I would share my reply with you. She had called on a nursing home to see if they had interest in recommending her services to the families of some of its residents. The nursing home director replied that they had a team of geriatric case managers they worked with – and asked what services she, the patient advocate, could provide that GCMs could not. Since she really couldn’t come up with a useful answer, she asked me if I knew the differences …

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