How to Avoid P*ssing Off the Doctor in One Easy Step

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OK – granted – I used that title to get your attention, but there’s a lesson here for all of us whether we use it for our clients, or for ourselves, or for a loved one — and that is — how to share information you have learned about symptoms, diagnosis, or treatment, without putting your provider on the defensive, or upsetting him / her.

Too often I hear people I know, or (worse) a health or patient advocate, say “I TOLD that doctor … (fill in the blank)”.  Argh. It makes me cringe. Because such an approach will most definitely elicit the opposite response to what they intended.

We’ll begin by putting this shoe on the other foot….

Suppose you’ve been baking chocolate chip cookies all your adult life. These are cookies that are SO VERY EXCELLENT that you have developed a fine reputation for them. They are sought after for all the best bake sales. You are legend among your neighbors for showing up with a plate of cookies when family is coming in from out of town, or they are celebrating something big. YOU and DELICIOUS CHOCOLATE CHIP COOKIES have become synonymous in everyone’s mind.

You’re very proud (even if only secretly) of your fine chocolate chip cookie reputation. Not that you go around boasting about it – you wouldn’t do that. But you know that when it comes to chocolate chip cookies, you are da bomb.

Recently, new neighbors moved in across the street, a young couple with little children. It’s time to take some of your most excellent cookies to them as a welcome gift.

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Sleep Deprivation Spells Opportunity – and Responsibility

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Saturday night (well, OK, in the wee hours of Sunday morning) across most of the US and Canada, we “sprung forward” our clocks, resulting in lost sleep, and at least a day of being totally thrown off because the day seemed… well…. just weird. Since most of us don’t work on a Sunday, the day of adjustment helped us acclimate, and then – life goes on with a longer day of sunshine through next Fall.

But what if you had to lose that sleep every few days, then re-acclimate every few days?  What if you spent your life in a constant battle with the time of day, and the loss of sleep? What if you had to put in 28 hour days of work and then, somehow, try to catch up on your sleep, returning just 8 hours later to do it all again?

And then what if your job was brand new and involved saving lives, because you were a first-year resident doctor (no, they don’t call them interns anymore)… and your patients, who were hospitalized so YOU could take care of THEM, were constantly at the mercy of your lack of sleep?

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Repeal of the ACA… So Now What Should We Do?

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Last week marked the inauguration of the 45th president of the United States. No matter your feelings about him or his politics, he’s here to stay, presumably for the next four years, alongside a Republican majority in Congress.

The first order of business?  Repealing the Affordable Care Act (ObamaCare), the legislation under which many of us are able to get, and afford, healthcare insurance, and access to the care we need. With the stroke of a pen, the icing on the repeal cake was completed within the first few hours of the new president taking office. Congress had already baked the cake’s layers just a few days before.

The predictions about the effect of this rollback are dire not just for those who depend on ACA insurance, but for all Americans. The non-political Congressional Budget Office estimates 18 million people may lose not just their health insurance, but their ability to get health insurance, too, amid new discussions about pre-existing conditions and high-risk pools.

We hear those politicians say they plan to improve the situation, that insurance will become more affordable, that they won’t take away the ability of Americans to access care. Lots of talk, but so far nothing that looks like a real, implementable plan. Just lots of speculation.

So what are we left with?

The status of healthcare delivery in America has never been in such a state of flux as it is today.

Whether or not you are insured through the ACA yourself, whether or not you have clients who are insured through the ACA, as health and patient advocates we have to ask ourselves, “So what should we do now? How do we help our clients? How does this change our services?”

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What the Presidential Election Results Mean for Patient Advocates

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When President Barack Obama ran for office in 2008, healthcare reform was already an enormous and contentious topic.

In those days, I was invited to speak to dozens of groups of patients and caregivers to help audiences sort out the issues that comprised healthcare reform so they could, on their own, decide which aspects (if any) were important to them. From the concept of “universal” healthcare through a public option, to coverage for pre-existing conditions, to portability, tort reform, free vaccinations to develop “herd immunity,” and many more, we looked at the whole of the topic as objectively as possible.

Before I started each talk, I would challenge audiences to figure out which side I was on by the time we were finished – reform? or no reform? It gave me great satisfaction that a show of hands at the end usually resulted in about a 50-50 split, demonstrating as much neutrality as I had been able to muster. It was somewhat surprising, because I was very much in favor of reform and truly not objective about the subject at all.

What I never mentioned to any of my audiences was this: that the bottom line for patient advocates was that healthcare reform was, simply, job security.

The reason: no matter what became of healthcare reform (and, of course, history tells us it became Obamacare, AKA the Patient Protection and Affordable Care Act or the ACA) – no matter what decisions became the law of the land, Americans were going to be confused by it all. They would be confused about costs, access, costs, access, access, and of course, costs, all of which could have huge detrimental effects on their health and care.

The more confused they became, the more they would need a health or patient advocate to help out.

Thus, job security.

That brings us to the 2016 presidential race, and victory for the candidate who said he will work to repeal the ACA.

No matter what your feelings about the outcome of last week’s presidential election, there are a few things advocates can take to the bank:

  • The healthcare system will go into further upheaval as the ACA is dismantled.
  • Patients and caregivers will find themselves more confused and frustrated than they have ever been.
  • The moneymakers in the system will seek new ways to maintain and grow their own profits, shifting and being shifty, making it even more difficult for patients to get the care they need at a cost they can afford.
  • The demand for private, independent advocates will grow – even more – and there won’t be enough advocates to help the patients and caregivers who need them.
  • Yes – all this adds up to even more job security.

We can’t anticipate exactly what changes will be made, but that doesn’t really matter. People are scared and confused now – today – because they just don’t know what to expect. They didn’t know before the election and they feel even less in control now. Even through the ACA, pricing has gone up in most states, and people feel like they are getting less and less for their money. Their confusion and frustration (and anger) is going from bad to worse.

They need help. They want help.

If you are absolutely serious about growing a successful advocacy practice, then NOW is the time to prepare. There will be no better time in history to establish your practice (if you haven’t already) and to expand it (if you’re already in business.)

Here’s how.

If you are just getting started:

If you’ve been in business for awhile:

For all professional advocates:

riper

What are you waiting for?

LEARN ABOUT APHA MEMBERSHIP | FIND MORE REASONS PATIENTS NEED ADVOCATES

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Of Heroes, Trust, Discord, Arrogance, and Karma – Part I

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This year I can tell I’m finally getting beyond the trauma. It’s a feeling of freedom to some extent, but sort of a shame to another. And you know me – I always end up analyzing these things (or, perhaps over-analyzing them) – enough so that I’m going to share some of that analysis with you.

The trauma I refer to was the cancer (lymphoma) misdiagnosis in 2004 that propelled me to change careers to patient empowerment, and eventually advocacy. By trauma, I mean that I was told I that in a few short months I would be dead, and that I butted heads with the very doctors who were supposed to help me manage my diagnosis, one a most-arrogant oncologist who, in God-like fashion, told me I was foolish to waste time getting a second opinion because “no one will know any more about your cancer than I do.”

Right.

On September 20, 2004 – 12 years ago last week – after three months of doing battle with the healthcare system, I learned from a hematopathologist at the NIH that I did not have lymphoma after all. There was no evidence of any cancer in my body. None. Zip. All these years later I have never had any treatment.

Clearly, no, I wasn’t dead in a few months. They were wrong.

Further, it cost me every penny of my savings to prove I did not have cancer, despite the fact that I had health insurance. (It was crappy, high-deductible health insurance, but I was single and self-employed, and it was all I could afford.)

Since then, every year on September 20th I have mentally celebrated what has become a rebirth of sorts. I have simply taken stock of all the positive life changes that resulted. I’ve tried to use that impetus to drive me past the PTSD that remained for so many years. It seems to work; I haven’t had a meltdown in more than two years, and life just keeps getting better and better.

I know I’m getting beyond the trauma because when Tuesday, the 20th rolled around this year, it was late afternoon before I even realized what day it was. In the past, I’ve dwelled on it for days before, and sometimes after… but this year, 2016, I barely thought about it at all. Hooray!

Of course, life lessons can always be gleaned from such an experience. So today, based on my misdiagnosis odyssey, I want to focus on behavior in the face of discord, and how it can have an enormous effect on one’s reputation and success as an advocate, just like it did for those doctors involved in my misdiagnosis. Further, over time, it can have an immense ripple effect, both good and bad – the part I call karma.

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