That Very Very Thin Line – Do NOT Be Tom!

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My husband and I moved two years ago to Florida where we now live in an “active adult” community*. We love it! We’re very happy here. We’ve met and made many new friends – people we have truly come to care about.

I’m following in family footsteps.  My parents did the same thing decades ago. They lived in a different city, but they, too, lived in an active adult community for 20+ years.

My father, in a somewhat macabre voice, always called it “God’s Waiting Room.”

And, as I learned again this past week, it turns out that we now live in God’s Waiting Room, too.

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Announcing: A Big Change for Admission to the AdvoConnection Directory

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Many readers of this blog are familiar with, or are already listed in the AdvoConnection Directory. It’s THE place to be for private, professional, independent advocates who want to be found and hired by patients or caregivers who need them. It’s the largest, and the only “vetted” directory that exists for advocates.

We”re announcing today a big change to what it takes to be listed in the directory which will affect almost everyone who has given thought to being included in the directory – but isn’t yet listed. That may include you!

We’ll begin with a little history to help you understand the change.

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History, Tidbits of Interest, and True Confessions about Patient Advocacy Certification

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Today’s post is deeply personal, the culmination of 5-1/2 years of work, thousands of hours of donated time and effort, and my hopes, emotions, and dreams for this profession of health and patient advocacy that I believe is so vital to the future of safe, effective, and fair patienthood.

It regards the launch in mid-March (2018) of Patient Advocate Certification from the PACB (Patient Advocate Certification Board), how we got there, my appreciation and deep respect for the hard work of my fellow PACBoard members, and the immense amount of pride I continue to feel about being a part of the Board, and my role in bringing certification to fruition as one member of the PACB.

It also includes some frustration and some lows that went with the highs….

It’s my personal take on history and true confessions all rolled into one.

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STOP! HALT! Keep Quiet … or Lose Business

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Last week two of my friends invited me to participate with them in a local March for Our Lives event being held Saturday.

If you are tuned into the news and politics of today, you know that marches were held to support gun control to keep people, especially our children, safe from being victims of mass murderers. Hundreds of thousands of individuals marched on Washington, DC, and in hundreds of other cities to bring attention to this issue.

To my friends’ invitation, I replied no. I couldn’t / wouldn’t go. But maybe not for the reasons you might think.

It’s not that I don’t believe in peaceful protests – because I do. I remember being inspired by the civil rights demonstrations in the 1960s. I participated in peaceful protests over the VietNam War when I was in college. I even (metaphorically) burned my bra!

But no, I did not attend the March for Our Lives. Here’s why.

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How Is Patient Advocacy Like Doing the Laundry?

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Would you ever hire someone to do your laundry?

Many of us would answer Yes! Of course! — IF we had the money. A big IF!

I suspect, however, that most of us would say no, knowing that washers and dryers make it easy to get the family laundry done, even if we dislike the task.  Further, we all think we know how to get our clothes clean (short of occasional coffee and ketchup stains). Even if we feel laundry-challenged, it doesn’t seem to be enough of a problem that we would actually pay someone else to do it.

However, last week I met a gentleman, Mr. Santello, who had just hired a woman named Gloria to do his laundry. It turns out that finding someone to wash, dry, and sometimes iron his clothes was more of a challenge than he expected. He said he called 11 different people before finding Gloria, and even then, he had to agree to her “exorbitant prices.”

Why was it so hard for Mr. Santello to find someone to do his laundry?

And how does that apply to patient advocacy?

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