Tough Questions, Informative Discussions, and Opportunities to Count Our Blessings

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From 2006 to 2010, I hosted a weekly radio show, sponsored by Upstate Medical University (Syracuse, NY). It gave me the opportunity to interview truly knowledgeable experts in every aspect of medicine and healthcare you can imagine.

It was an incredible learning experience. I would walk away from our recordings each week realizing that for every iota of information I knew or had just learned, there were millions of iotas I didn’t know, would never know, and might never even know to ask about. Gratifying, brain-stimulating, and sometimes overwhelming.

photo - dr eastwood

Dr. Gregory Eastwood

Included in the conversations was a monthly feature that focused on ethical questions in medicine and healthcare. I co-hosted the sessions with Dr. Gregory Eastwood, the president of the university, and a member of the Bioethics and Humanities Department. We made quite a team: the professional who, for decades, had dealt with these issues and the people who faced them, paired with me, the patient, who had never had to deal with most of them, but who tried to put herself in the shoes of those very frightened, overwhelmed and sometimes angry patients and family members who were forced to face difficult and often heart-wrenching decisions.

During those years we produced dozens of rich discussions, dealing with facts, reality, and perception, as affected by morality, religion / spirituality, culture, the law, and the human heart. I just loved those conversations – they made me think in directions my brain had never been forced to go before. (One of the results was the reminder to count my blessings. Few of us do that often enough.)

In 2010, I had to walk away from my hosting duties. My travel schedule had made it all but impossible to keep up the weekly recording schedule; totally unfair to the producers, and exhausting for me. I look back on the experience with gratitude for both the opportunity of meeting so many intelligent people with so much expertise, and the in-depth education I received on so many topics related to medicine, the healthcare system, and their impact on people.

Fast forward to today.

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Announcing – the Winner of the Schueler Patient Advocacy Compass Award for 2016

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The most prestigious award in the profession of patient advocacy, and in particular, independent, private patient advocacy is awarded this time each year to the person who best exemplifies the tenets of the award.

Drum roll please!

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Physicians Buying In – Bring on the Patient Advocates!

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Posted in the APHA Discussion Forum by one of our member advocates,

In the last week I have received calls from 2 potential clients whose physicians actually advised them to get a Patient Advocate! One was for medical insurance denials and the other was for patient navigation. It makes me really happy that physicians in my area are recognizing that we exist and can help their patients.

Followed shortly thereafter by another advocate who observed,

I know the clinicians I encounter learn to deeply appreciate my role-and, except for those who are dismissed, become more deeply engaged with my clients, who are their patients. MDs seem to be relieved with the presence of another pair of eyes scrutinizing the medical history, reviewing the pharmaceuticals (and my invariable submission of corrections to the medication record residing within the EHR), researching clinical guidelines, finding ways to better coordinate care, and averting potential catastrophes.

And still another who added,

We get lots of referrals from physicians. We just did a webinar for a group of physicians in our area. It’s a great way to get the word out. Glad to hear others are experiencing the same!

So why is all this news, and why does it belong in this blog?

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Breaking the Rules

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If you think about it for a minute, rule-breaking plays an enormous role in the life of a patient advocate.

Rule breaking – is one reason (even if it’s not the only reasons) we exist – a problem we fight. One reason we are hired.

Rule breaking – can be a success tactic – one way to win the fight.

Rule breaking – is one of the major factors that separates private, individual professional advocates from our hospital and insurance counterparts – the distinction that often makes the difference to patient-clients’ outcomes.

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Revisiting the Case of Farid Fata – Why Patient Advocates Must Take Notice

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In July 2015, we took a look at the case of Farid Fata, the Michigan oncologist who is now in prison on fraud charges because he diagnosed and treated more than 500 people for cancer they didn’t have, many of whom died.

Yes – you read that right.  You read the part about treating more than 500 people for cancer they didn’t have.  And, I hope you caught the part that he is in prison on FRAUD charges – not murder, not manslaughter – nothing that recognizes the horrible physical condition he left those patients in after aggressive chemo and radiation. Whatever he could make money from, that’s what he did, and that’s why he is in prison.

See:  A Second Opinion Isn’t Good Enough

Shortly after publishing the post about second opinions, I wrote about how, if any of Fata’s patients had hired a patient advocate, they would not have become victims. There are tasks we do to help our clients that would have prevented harm once we were hired. 

See:  How Professional Patient Advocates Would Have Stopped Farid Fata

Then, last night, NBC’s Dateline took a more in-depth look at the case of Farid Fata, featuring interviews with a number of the patients he had treated, plus an interview with a nurse, Angela Swantek, who figured out what he was doing during a job interview three years before Farid was arrested. No, she didn’t take the job. Instead she blew him in – and the State of Michigan did nothing about it then. (I say KUDOs to her and a pox on the house of those people who decided not to investigate.)

What I learned during the Dateline interviews was that Continue Reading →

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