Merriam Webster, The Who, and Hacking Churnalism

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Today we’re channeling The Who, Merriam Webster and one of my longtime favorite fellow patient empowerment buddies, Gary Schwitzer, who reminds me at least weekly why we just can’t trust the media without very careful review. As follows: I love a new word. When this one appeared in my inbox last week, I wanted to share it with you because it’s an important concept for advocates and patients alike. Today’s new word is: Churnalism.(Take that Merriam Webster!) Churnalism is the product of lazy reporters and journalists who, without further investigation or review, simply reprint (or broadcast) a submitted press release …

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Shark Tank, Narrative, Your Audiences – and Success

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I’m a huge fan of TV’s Shark Tank. Not an episode goes by when I don’t learn something about business, investment, marketing or some other tidbit I can use in my work. My favorite “shark” is Barbara Corcoran because I find she bases her investment decisions on smart money-making plus appropriately enthusiastic entrepreneurs who share their stories of passion and work ethic. This season there is a new shark in the tank, Troy Carter, who prior to this was totally unknown to me. Seems he used to be Lady Gaga’s manager, and is known for media production. He’s certainly on …

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When Life Gets In the Way

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Sometimes life just sucks. At least that’s my conclusion after hearing recently from too many friends who are suffering various horrible things – health related, money related, death related, job related. And that’s just the friends who have shared their sucky situations. Some of those friends are patient advocates, and among them are some very difficult health situations – cancer, a brain tumor, a stroke, a car accident… sometimes affecting themselves, other times affecting a loved one – a spouse, a child, a parent. I’m stunned, floored, worried, and my biggest frustration is that there is not a darned thing …

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Why I Hope These Pigs Never Fly – and You Should, Too

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This is the question that has plagued me as the director of a professional patient advocacy organization since it was first launched. It’s a question that usually comes from someone who is just thinking about becoming a patient advocate, one who hasn’t yet gotten his or her feet wet in our growing puddle of advocacy, ethics and best practices, although sometimes it comes from a more seasoned, yet not-yet-financially solvent advocate. It is asked in a hopeful manner, as if it is the answer to prayers – or at least payment. It’s at the very least naive, and at the …

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The Advice That May Tick You Off

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In 2012, I blogged about this very topic. One ticked-off reader then attacked me on Twitter. A day later, both she and another member of The Alliance of Professional Health Advocates left the organization, both citing the post. Ouch. But it was good advice then, and it’s still good advice today. So at the risk of provoking additional readers, I’m going to wade into those waters again. Since most of us are self-employed, in the process of either starting or growing a professional practice, you’ll find that this advice will serve you very well, even if it IS maddening or …

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Goldilocks, Dad and Finding Care That’s Just Right

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My dad retired in the 1980s. In addition to his pension he had also earned health insurance coverage for the rest of his life. Over time, as you can imagine, the actual value of that insurance became more and more evident; In all likelihood, it was a many-years-of-life saver, because he lived until 2012. But then, I think his health insurance may have killed him, too. Dad retired early at the ripe old age of 60, because when he was 59, he was diagnosed with prostate cancer. His resulting surgery did not successfully remove all the cancer cells, so Dad …

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It’s the #1 Reason: YDKWYDK

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They’re getting worse. Or at least it feels that way. I’ve just spent a week away, traveling across the country for both business and pleasure. While on the road, I’ve talked to dozens of people I’ve never met before. When the subject turned to the “what do you do for a living?” question, and I answered, almost every one of them regaled me with a story, one story more surprising, frightening or tragic than the next. Either they or a loved one have been caught short by the medical care system, leading to inconvenience at the least, or debilitation, a …

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